Haemophilic Welfare Society of Chandigarh Sunday organized a daylong open clinic for patients with Haemophilia (PWHs) for an effective treatment and management of the disease.
Presiding over the function Pardeep Chhabra, Mayor Chandigarh Corporation asked the members of the society to submit a charter of their demands so that he could take up this matter with the states of Punjab, Haryana, Himachal Pradesh and UT Administration Chandigarh to evolve a joint action programme to provide timely and adequate treatment through the concerned medical authorities.
He assured the society that he would plead their case before the administrator for allotment of a plot for the society to discharge its day-to-day functions in a meaningful and result oriented manner.
He assured the executive of the society to lead a delegation to PGI to impress upon the Director Dr.KK Talwar to treat the patients of Haemophila at par with the patients of Thalesemia thereby earmarking a special ward, doctors and para medics for the PWHs.
He also assured full cooperation and support for organizing such medical camps to bring awareness for the effective management of the dieses amongst the PWHs.
The mayor also said that he would take up the issue of opening a special clinic for the PWHs in the PGI to ensure timely treatment to them.
Speaking on the occasion, Dr. J.G.Jolly, Emeritus Professor Transfusion Medicine and formally professor of Transfusion Medicine PGIMER, Chandigarh and Chairman of the Society said that the state governments of Punjab, Haryana, Himachal Pradesh and Union Territory of Chandigarh should immediately address to the problems of PWHs and chalk out a strategy to give adequate financial, medical and moral support to them in order to cope up with this mental trauma.
He pointed out Haemophilia was a hereditary disease characterized by deficient activity of blood clotting factors of VIII & IX. Dr. Jolly emphasized on the need to provide necessary backup support to the affected parents to enable them to cope with the tremendous psychological stress from the day one when their child was diagnosed as a Haemophiliac. To achieve this objective NGOs and other social and voluntary organizations could play a vital role in overcoming the stress encountered by these hapless parents for none of their fault.
Similarly, PWHs should also be encouraged and motivated considerably to lead a happy and normal life by giving them timely care and treatment and concerted efforts should be made by the parents, teachers and medical fraternity to boost their morale so as to lead them a normal; life without developing a feeling of inferiority complex amongst them.
Dr. Jolly attributed this disease as purely a genetic disorder and had nothing do with a good or bad luck. He pointed out that it was the bounden duty of the parents to prepare their children psychologically to muster enough courage to bear the brunt of the disease. He advised the PWHs to get them regularly medically checked so as to maintain the base line of the factor VIII or IX.
He also urged the society to update the data of the PWHs for the research and reference purposes. He also impressed upon the doctors of the PGI and research scientists who were present on the occasion to regularly hold such open clinics for the well being and benefit of the PWHs.
He also urged the members of society to form a core group to take up various matters with the Chandigarh administration and the PGI authorities in an effective and result oriented manner.
Indira Venkatraman, Executive member of Haemophilic Federation of India (HFI) appealed to the Central and State Governments to provide adequate medical and financial help to the Haemophilics. She also called upon the electronic and the print media to promote awareness about Haemophilia among public in general, doctors, paramedical staff and NGOs so as to minimize the sufferings of hemophilics.
She also urged the UT administration of Chandigarh and the Governments of Punjab and Haryana to issue a notification for providing free factor VIII and IX to the PWHs of below poverty line and above poverty line families on the pattern of Delhi government.
Dr.Pallavi Saini Physiotherapist underscored to hold such clinics regularly and should be located in the hospital out patients thereby offering consultation in all necessary areas of specialized knowledge; hematological, surgical and orthopedic, physical and physiotherapeutic, dental, social and psychological & educational. Dr.Saini Physiotherapist practically demonstrated few exercises to the PWHs for improving the mobility of their joints.
As many as 350 patients were clinically checked up on the spot and all of them were infused free Factor-VIII & IX besides vaccination of Hepatitis-B to 50 patients and booster dose to 150 patients.
Posted By Staff Reporter: Gurgaon City News
in Gurgaon News
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